Bardet-Biedl Syndrome (BBS) is one of many genetic conditions that can cause RP/blindness in young children. Our son, Luke, has been diagnosed with BBS1 and is actively going blind. And thus, the birth of A Race Against Blindness, an organization dedicated to finding a cure for BBS/RP. Over the last few years we have been able to grant $5.1M towards a clinical trial actively working on a cure for Retinitis Pigmentosa. That progress is due to YOUR support. YOUR donations are making a real world d
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